The Learning Disability Mortality Review (LeDeR) programme

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Black Country and West Birmingham - LeDeR Annual Report:

The LeDeR Programme supports local areas in England to review the deaths of people with learning disabilities aged 4 years and over.Its main aims are:

  • To support improvements in the quality of health and social care service delivery for people with learning disabilities.
  • To help reduce premature mortality and health inequalities for people with learning disabilities.

A confidential telephone number and website enables families, health and social care providers and other key people to notify the LeDeR team of the death of someone with learning disabilities.

An initial review of the death will then take place. The purpose of this is to provide sufficient information to be able to determine if there are any areas of concern in relation to the care of the person who has died and if indicate, a more in-depth, multiagency review will then be conducted to see if any further learning could be gained that would contribute to improving practice. The reviews also identify areas of good practice which can be shared.

As part of the review, the local reviewer would speak to family members, friends, professionals and anyone else involved in supporting the person who has died to find out more about their life and the circumstances leading to their death.

The Annual Report on Learning Disability Mortality Reviews (LeDeR) for Black Country and West Birmingham 2019/20 can be viewed here

The National Annual Report for LeDeR 2019

The LeDeR Programme's 2019 annual report indicate ongoing concerns about the premature deaths of people with learning disabilities. 

A summary of the recommendations from the national annual report can be viewed here

We have been working closely with our Local Authority partners and many of the shared resources and information can be found at . We have also been sharing a number of resources from SCIE which can be found here 


In Sandwell and west Birmingham, we have started to scope learning from many completed reviews. Several short briefings have been produced to reflect some of the recommendations that we have identified:

Briefing - Annual Health Checks

Briefing - Pneumonia

Briefing - Dementia

Briefing - Mental Capacity Act

Briefing- Next of Kin

Briefing - Pain

Briefings - Joined up care

LeDeR newsletter 

7 minute Makaton briefing  


Further information on LeDeR:

• Learning Disability Mortality Review (LeDeR) Programme: Action from Learning report

• Easy Read stakeholder briefing: Information about a new report about the deaths of people with a learning disability-LeDeR

• HQIP: Learning disability mortality review programme

The local area co-ordinator for Sandwell and West Birmingham can be contacted at This email address is being protected from spambots. You need JavaScript enabled to view it.